Drugmakers Are Set to Pay 23andMe Millions to Access Consumer DNA::GSK will pay the DNA testing company $20 million for non-exclusive access to genetic data.
23andMe will provide GSK with one year of access to anonymized DNA data from the approximately 80% of gene-testing customers who have agreed to share their information for research
I see no problem with that. Idk what's newsworthy here tbh.
The problem is that just because you are ok with sharing your data (even if you don't understand the potential consequences), your close family and any decendants aren't able to consent or not consent to their shared genetic data being given to these corporations.
How would you feel about your children being unable to get insurance coverage because a close relative used the service and the insurance company decided they were at too high risk for expensive medical problems due to similarity of genes?
How would you feel about your children being unable to get insurance coverage because a close relative used the service and the insurance company decided they were at too high risk for expensive medical problems due to similarity of genes?
To be clear, this is a made-up scenario that would be illegal under current US law.
I see no problem with that. Idk what's newsworthy here tbh.
The problem is that just because you are ok with sharing your data (even if you don't understand the potential consequences), your close family and any decendants aren't able to consent or not consent to their shared genetic data being given to these corporations.
How would you feel about your children being unable to get insurance coverage because a close relative used the service and the insurance company decided they were at too high risk for expensive medical problems due to similarity of genes?
To be clear, this is a made-up scenario that would be illegal under current US law.
Companies break laws all the time. The punishment is frequently small compared to profits from the crime.
Vague nihilism doesn't dispute what I said