this post was submitted on 14 Feb 2024
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Autism

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I have a 10 yo daughter with PDA autism (and ADHD) who decided to refuse her medication in early January. We have noticed a big difference from when she took them so we really want her to get back on them, but nothing we have tried works. Anyone with some experience they want to share? We are grasping for straws at this point. Help

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[–] DessertStorms@kbin.social 9 points 8 months ago* (last edited 8 months ago) (17 children)

We have noticed a big difference from when she took them so we really want her to get back on them

We have tried to apply whatever trickery we get from the groups we are in

We have gone through a slew of different meds and delivery systems that she outright rejected because of nasty taste or hard to ingest.

The only reason we are getting our of her is that if she takes them, we (the parents) win and ergo, she looses

Can you really not see a connection?

Does she feel better on them, or is she just easier for you to deal with?

Kids know when you trick them, and every time you do, they lose trust in you. Autistic people especially value honesty and directness, we often see right through the bullshit. Stop playing tricks on her, and start working on building trust back.

She may absolutely benefit from the medication, I am not her doctor and I don't know anything about her, and I am not advocating neither for nor against it, but from what you have said, it sounds like you've put her through a hell of a lot to try and find something that "works", but it doesn't sound like it's working for her, not at this point anyway. If the medication makes her feel better, she'll probably want to be on it again in her own time, or she won't, and then either way - you have your answer.

[–] spainball@lemmy.world 3 points 8 months ago (9 children)

We definitely see the connection and think we have a pretty good idea why she is not taking the meds. A big part of the problem is that we have been told by school and doctors for a couple of years now what to do, and we have done as instructed because they are supposed to be professionals. And the result is like you described, she does not trust us fully anymore.

Im certain she feels better from the meds, but perhaps not directly. But all the fights and irritation that can be avoided has so many side effects. And we saw a very different person back when she took them, happy and at least more content. Its a bit of a catch-22 at this point and I just wish there was something we could do.

[–] Cheradenine@sh.itjust.works 4 points 8 months ago (3 children)

I never had meds as a kid, only as an adult. I hated them, and I did not feel better. I probably behaved better around others, but I was dead inside and it felt artificial. I knew what was happening and felt awful.

I am not going to diagnose someone online. But keep in mind meds are not for everyone and the change you see vs. What they experience may be vastly different things.

I wish you the best of luck.

[–] spainball@lemmy.world 3 points 8 months ago (1 children)

While i think i knew that, its so hard to not lean towards something that (from my perspective) seems to work. But you are not the only one here with this idea, I cannot overlook that and might just have to accept that meds are not for her. Thanks

[–] Cheradenine@sh.itjust.works 1 points 8 months ago (1 children)

I could be totally off base. I only know my own experience. It's possible that hers is similar, it's equally possible that it isn't. I'm sorry that is not more helpful but I wanted to put it out as another viewpoint.

[–] spainball@lemmy.world 3 points 8 months ago

I am very grateful for all insight given here. While its not a silver bullet, its another perspective we can take into consideration when trying to help her

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