this post was submitted on 28 Jun 2024
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Yeah, I suffer from chronic pain, too, though not to the degree that you appear to. It's kind of funny because I know I'm really tired or mentally exhausted when I start noticing all the pain I normally have, but just haven't even noticed for hours before.
It's impressive what the mind can tolerate.
Your brain can take a hell of a lot of abuse until it can't.
I was holding it together for nearly 3 decades before it was unable to keep up with major sleep deprivation anymore. 10-12 hours of sleep a night and a nap midday couldn't keep me going.
I was blacking out time while driving, had barely any memory, had involuntary muscle spasms and couldn't physically recover from injury in a reasonable time.
Once I started on CPAP I recovered by leaps and bounds, I sleep way less but am fully present in the world, like being on high dose of caffeine without taking anything.
I'm struggling myself there, my mental acuity has dropped, so has my social ability, understanding, and learning. I have UARS and need to get it fixed. I sleep in excess and its never quality. Several sleep studies showed I wake from REM 15-20 times an hour (not to consciousness though).
To anyone not aware of sleep apnea it wouldn't seem like there was anything wrong with my sleep. I don't snore, I just don't breathe continuously when unconscious.
It took about 2 years to fully recover mentally from decades of this shitty sleep. I only found out from visiting my parents and my mom saw me not breathing while I was asleep on the couch. I've also had 6 sleep studies in 11 years to try and figure out why it is happening but it is idiopathic.
I can't remember what people on Reddit with UARS found to be the best treatment but the biggest step always seemed to be getting a doctor to diagnose it properly instead of just signing it off at regular sleep apnea. I hope you find a treatment that helps. The brain can bounce back, so don't give up hope that you can get your mind back.
Thanks, I am trying to stay hopeful. My next step needs to be an ENT and probably to fix a collapsed nasal cavity. I worked with a neurologist for 3 years (where the sleep studies came from) but they ended up leaving state for persona matters. I live in the USA so I have to go through insurance which doesn't really recognize UARS. Though I did scratch my way into diagnosis of apnea (sleep study recorded just above the 5% oxygen drop required by insurance) they refused to let me test with a CPAP. It was the only diagnosis my neurologist could use to get insurance to help, still, they won't really do much for me.
Hopefully soon I can sit in one place without the threat of falling asleep. Or wake up feeling rested and not my eyes burning feeling like I was hit by a brick lmao. Sleep issues are no joke and you're right to tell people to make sure people get it properly handled ASAP