this post was submitted on 17 Jul 2025
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Officials let ICE access health data to locate migrants, alarming experts who warn of civil rights and health risks

Medicaid officials have reportedly made an agreement with Immigration and Customs Enforcement (Ice) to allow agents to examine a database of Americans’ personal information – including home addresses, social security numbers and ethnicities.

The data sharing agreement will allow Ice to find “the location of aliens”, according to an agreement obtained by the Associated Press. Medicaid is the nation’s single largest health insurer, providing coverage for 79 million low-income, disabled and elderly people.

“This is about the weaponization of data, full stop,” said Pramila Jayapal, a Democratic US representative from Washington state, who has worked extensively on US healthcare, in a statement on social media.

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[–] LordCrom@lemmy.world 9 points 2 days ago (1 children)

I've been saying this forever....

HIPAA Data is protected and private, until someone with power decides it isn't.

Never trust your data to anyone

[–] r0ertel@lemmy.world 4 points 2 days ago

...but I have nothing to hide.

I'm so tired of hearing this and when you bring up that a Jewish person did not feel that they needed to hide their religion in 1933, they'll say, ""that's different."

[–] Angry_Autist@lemmy.world 41 points 3 days ago (1 children)

And again dems wring their hands and whine while the GOP violates HIPAA and destroys families

Sure would be nice IF THERE WAS A FUCKING ADULT ANYWHERE IN GOVERNMENT RIGHT NOW

[–] hddsx@lemmy.ca 9 points 3 days ago (1 children)

I’m not in health care so I’m not really familiar with HIPAA but I thought it just protected against health care companies and not the government? Although I must say, it never occurred to me that they would do something like this

[–] Cris_Color@lemmy.world 12 points 3 days ago* (last edited 3 days ago) (1 children)

My understanding has always been that doctors shouldn't share peoples private health information with law enforcement either...

Like if the cops suspect you of a crime or planning a crime, they can't just go to your therapist and ask them what you talk about in your sessions...

I have no expertise but that has always been something I thought was protected. Maybe it's changed if it's demographic and personal experience rather than medical...? I have no idea

[–] Kn1ghtDigital@lemmy.zip 6 points 2 days ago (1 children)

Stop pretending like MAGA is playing by the rules everyone. Ice agents are terrorists and shouldn't be given the respect of your cognition for a civil society that protects itself from tyrants. Your health information is your own fucking business and a trespass on that should be treated with the horror and aggression it deserves.

[–] Cris_Color@lemmy.world 1 points 2 days ago* (last edited 2 days ago) (1 children)

My reservation is due to not having the legal expertise to substantiate that it is legally in the wrong, when I believe it to be morally in the wrong.

I'm literally on medicaid, I'm not happy that ICE was handed my private information. Fortunately for me, I'm white.

What a time to be alive 😶

[–] Bronzebeard@lemmy.zip 2 points 2 days ago

It is, in fact, a blatant violation of HIPAA

[–] chicken@lemmy.dbzer0.com 18 points 2 days ago

However, even the existence of such an agreement could deter people from seeking needed medical care

I'm sure that's an intended part of it.

This won't stop with migrants. I'm in that database with a long record of treatment for ADHD and a shorter record of treatment for autism. RFK is gonna send me to camp to learn how to concentrate sooner or later.

[–] SpacePanda@mander.xyz 18 points 3 days ago (1 children)

People here illegally aren't on Medicaid.

[–] flandish@lemmy.world 15 points 3 days ago

that’s the point. they pull the rug, then when you are in the lobby of your doctor office they kidnap you and send you to the death camps. you “became illegal” when they pulled the rug from under your feet. they just didn’t tell you.

[–] LovableSidekick@lemmy.world 2 points 2 days ago* (last edited 2 days ago) (1 children)

My wife's parents were both Americans, born in Missouri, but she was born in Brazil while they were both working down there. When they came back to the states they filled out papers to establish her US citizenship. This was decades ago. She's absolutely an American citizen, no question about it, they were just outside the country when she was born. But we're currently planning a trip to Scotland and she can't find her passport, so she's been going through the (amazingly arduous) procedure of getting a replacement. Now I've started to worry that this process is going to trigger some kind of misconceived alarm, and ICE will show up and haul her away with the accusation that she's an illegal Brazilian. I mean, it's not all that far-fetched is it? Or am I just being psycho?

[–] GreenKnight23@lemmy.world 3 points 2 days ago

won't lie. it's a possibility. make a plan now for if it happens later.

I say the next not to scare you, but to give you ideas on what to plan for.

  • get in contact with immigration lawyers
  • familiarize yourself with Brazilian deportation processes
  • identify safe living locations in Brazil for her while you figure out next steps
  • prepare a care package that can be shipped asap to a hotel or post office in Brazil that will have everything that she could need for 2-4 weeks.
    • cell phone
    • phone numbers
    • laptop
    • documents
    • food
    • medications
    • money(or things that can be sold for money)

I would also recommend getting her some gold or silver accessories that can be sold or traded when she lands in Brazil. these would be things she can carry every day like rings, necklaces, earrings. if they deport her, they wouldn't take any of her personal belongings unless they posed a threat.

also, as fucked up as it is, placing an airtag in her shoe might give you both peace of mind if she's taken. there might be weeks where neither of you communicate if current events tell us anything.

be prepared for the worst and hope for the best. good luck and I hope you never have to activate your plan.

[–] Luffy879@lemmy.ml 7 points 2 days ago (2 children)

In germany we call it Datenschutz.

[–] burgerpocalyse@lemmy.world 3 points 2 days ago

is it because you schutz the daten

[–] unexposedhazard@discuss.tchncs.de 5 points 2 days ago* (last edited 2 days ago)

And there are plans for it to be violated in the exact same way here in Germany :(

[–] b_tr3e@feddit.org 9 points 3 days ago (3 children)

The original sin was storing things like "ethnicity" in the database at all. What does ethmicity have to do with health?

[–] fruitycoder@sh.itjust.works 4 points 2 days ago (1 children)

Honestly, and people will argue in this thread that "actually there are some trends". No, not really. Race as always is a shit ass way to categorize people. Income has a tighter correlation for most things. What about genetics conditions they ask? Track fucking genotypes then. What about phenotypical conditions like melatonin correlation to sun burns? Again, that singular fucking attribute does a better job as measure the thing that fucking matters!

What doesn't do that is the social construct based on the most visable phenotypes associated with a region in the world over 200 hundred fucking years ago!!

[–] GreenKnight23@lemmy.world 2 points 2 days ago (1 children)

race is important for medical. it's not just a social construct.

Chloroquine was used for many years to treat malaria but it was found dangerous to give to people of African and Arabic descent.

I don't believe it's used anymore, but it's an example of environment directing genetic behavior at the cellular level.

we are all indeed the same species, but there are varying degrees of medical reasonings for tracking race and gender.

that said, it's important that these agencies that house citizen information stand equal to in power to other branches of government in order to protect citizens information and services provided.

[–] fruitycoder@sh.itjust.works 3 points 1 day ago

Africa is a continent. What they found some peoples found in the southern Mediterranean regions had a shared reaction. To then go "Africans should avoid..." Is to do massive disservice to the practice of medicine.

No meaningful concept of race is used, so it is in fact meaningless. You might be able to group people into hundreds of haploid groups. But white, black, yellow, red, Asian, European, African, Native American, is so broad to be not just useless but actively harmful by providing misinformation as facts.

[–] hypnicjerk@lemmy.world 24 points 3 days ago (1 children)

a lot, lol. minority groups often have different medical needs than the majority, and ignoring those differences leads to worse outcomes for them. from a research perspective especially it's critically important.

[–] theparadox@lemmy.world 7 points 2 days ago (1 children)

There are reasons to store race/ethnicity. One that is relevant to almost any scenarios is tracking discrimination.

[–] WhyDoYouPersist@lemmy.world 6 points 3 days ago