Scary. But I'm glad they're continuing the research and making progress. Article says about 14% of adults get long covid. Potentially quite a few people.

Do we even know if there might be reservoirs left? Maybe they are there for a reason.

Why does it take so long to work this out? The complement system is one of the first things you learn about in immunology, there exist standardised blood tests for monitoring it

Hmm, should I try getting it a fourth time? 😂

I managed to avoid it until Jan 2023 when I was hit the first time. Completely asymptomatic, I would have had no idea I was infected if it wasn't for the fact I RAT/lat flow tested twice weekly because of my job.

Recovered fine, didn't have any lingering symptoms.

Then in May I started getting a bit run down, my lymphnodes around my neck and jaw were really swollen and inflamed, and I was chronically congested, but not with any mucus or anything, just felt like my sinuses were swollen shut, and in the first week of June I had my second covid infection, still mostly asymptomatic, no cough or anything, just fatigue and headaches.

The headache never really went away. I've had chronic headaches my whole life due to arthritis in my neck, but this was different, more pressure and in a different location.

In September I got Covid again, and since then I have felt so crook. Migraines almost every week, moderate headaches every day from the moment I've wake up to the moment I pass out from exhaustion. The fatigue never went away but I can't sleep anymore. I'll lie in bed for hours but only get ~4 hours sleep a day, sometimes I'll get 8 hours but in multiple naps. I'm thirsty all the time and can't quench it, but I'm not really peeing at all, even less than usual despite drinking more water. Some days I can't keep food down, some days food goes straight through me, there's no middle ground. My lymphnodes are still swollen and now it's all over my body, not just in my jaw and neck. I've had sinus bradycardia since September and dyspnoea (feeling like I need to yawn but can't, like the air in my lungs isn't getting in deep enough), and my nose bleeds every morning.

I've seen my doctor 8 times since June, basic tests have been run and all they can say is "it's stress and long covid"

Im fucking sick of it. I've had to drastically reduce my hours (and pay) at work, and I miss my friends and all the fun active things I used to do.

I'm still managing to get by, but I wish I had a better understanding of why I feel the way I feel. "long covid" feels just as useless as no diagnosis at all.