this post was submitted on 08 Sep 2023
56 points (93.8% liked)

Autism

6862 readers
51 users here now

A community for respectful discussion and memes related to autism acceptance. All neurotypes are welcome.

We have created our own instance! Visit Autism Place the following community for more info.

Community:

Values

  • Acceptance
  • Openness
  • Understanding
  • Equality
  • Reciprocity
  • Mutuality
  • Love

Rules

  1. No abusive, derogatory, or offensive post/comments e.g: racism, sexism, religious hatred, homophobia, gatekeeping, trolling.
  2. Posts must be related to autism, off-topic discussions happen in the matrix chat.
  3. Your posts must include a text body. It doesn't have to be long, it just needs to be descriptive.
  4. Do not request donations.
  5. Be respectful in discussions.
  6. Do not post misinformation.
  7. Mark NSFW content accordingly.
  8. Do not promote Autism Speaks.
  9. General Lemmy World rules.

Encouraged

  1. Open acceptance of all autism levels as a respectable neurotype.
  2. Funny memes.
  3. Respectful venting.
  4. Describe posts of pictures/memes using text in the body for our visually impaired users.
  5. Welcoming and accepting attitudes.
  6. Questions regarding autism.
  7. Questions on confusing situations.
  8. Seeking and sharing support.
  9. Engagement in our community's values.
  10. Expressing a difference of opinion without directly insulting another user.
  11. Please report questionable posts and let the mods deal with it. Chat Room
  • We have a chat room! Want to engage in dialogue? Come join us at the community's Matrix Chat.

.

Helpful Resources

founded 1 year ago
MODERATORS
 

A thorough list of scientifically based assessments with descriptions and ability to complete and score. One of my favorite things about a few of these test is that they show that the spectrum isn't a continuum, but more of a web of traits that are on separate but related continua.

Feel free to share your scores to engage in discussion!

Note: A self-assessment is not sufficient to properly assess autism. These assessments can provide helpful insight, but a proper assessment includes at least a thorough interview by a licensed mental health professional that specializes in autism assessment.

all 35 comments
sorted by: hot top controversial new old
[–] can@sh.itjust.works 11 points 1 year ago (1 children)

Well, just did a few and it definitely indicates I'm right on the cusp.

[–] BackOnMyBS@lemmy.world 12 points 1 year ago

One of us. One of us. One of us.

[–] sorrowl@lemmy.blahaj.zone 9 points 1 year ago (3 children)

Well, I just scored a 37 on the autism spectrum quotient.

[–] Lhianna@feddit.de 7 points 1 year ago* (last edited 1 year ago) (2 children)

This downvote here is what has been mentioned by @backonmyBS@lemmy.world in the toxicity in this community thread. In the post it was asked to post results if someone is comfortable with it so this comment is exactly what contributes to the post.

Downvote things that don't contribute, not things you may not agree with.

[–] BackOnMyBS@lemmy.world 3 points 1 year ago

It reminds me of the site ytmnd.com, which is where I first heard the idea of a downvoter. It was already a known phenomenon back in the mid 2000s. Someone even made a wiki page about it, categorizing users based on their driving cause.

[–] Pirky@lemmy.world 7 points 1 year ago (2 children)

How do you feel about your score?

For me, I got a 42. On one hand, I finally feel like I have an explanation for why I never "fit" in and felt like I was never meant for this world. On the other hand, I feel a little sad about this and, in a way, wish it was something else. But I can't quite figure out why. I need to keep ruminating on this.

[–] fluke@lemmy.world 5 points 1 year ago

About 2 weeks ago I saw something that made it twig for myself. It was a random Orion Kelly video about the biggest signs of autism in adults and I found myself stunned that I hit every point but one.

Initially I was like you. Confused on how to feel. 'Autism' for me has always been a loaded word and came with particular connotations.

But this last week, especially, has certainly softened those feelings. I'm still not happy with applying the word to myself. It feels awkward and an excuse, and coming from 32 years of being fearsomely independent (probably because I'm on the spectrum) and a strong believer in people being in control and responsible of their own actions it's still a tough pill.

Overall I think ruminating has been good for me. Keep researching it, reading/listening to other autistic people's stories and experiences and start making a list of the traits that you identify with. It's helped me have something that I can share with my partner, and it's helped me realise things like what my stims are etc.

[–] sorrowl@lemmy.blahaj.zone 4 points 1 year ago (1 children)

I feel kinda relieved. Autism would be an explanation why so many things that seem obvious to others, seem so weird or different to me. Of course I know that tests and self-evaluation doesn't mean you necessarily have it, but I have been told before by a mental health professional, that I might be autistic. I should definetly look into it more with a professional.

[–] smollittlefrog@lemdro.id 4 points 1 year ago (1 children)
[–] BackOnMyBS@lemmy.world 3 points 1 year ago

Well betond the autism threshold! Below are my results when I took it a few months ago. The social relatedness really hit home. I've had so much difficulty with that, so it's a bit validating to know I'm not making it up.

https://i.imgur.com/LA0N8F5.png

[–] Deestan@lemmy.world 4 points 1 year ago* (last edited 1 year ago) (1 children)

I took as many of these as I could a few weeks ago in preparation for a doctor visit. While not medically useful, it helped a lot in clarifying where the suspicions are strong and where they are weak. If I had been more vague, I'd have been placed in the general queue where waiting times are years if they even feel they can spare the resources to talk to you (which they did not the last two times). Now I have chance to be assessed, so fingers crossed.

  • AQ: 38
  • ASRS-5: 9
  • ASRS-V1.1: 7
  • CAT-Q: 133
  • EDA-QA: 23
  • EQ: 25
  • OAQ: 137
  • RAADS-R: 163
  • RBQ-2A: 37
  • SQ-R: 85
  • TAS-20: 67
  • Y-BOCS: 3
[–] BackOnMyBS@lemmy.world 3 points 1 year ago (1 children)

How do you feel about your scores?

[–] Deestan@lemmy.world 3 points 1 year ago (1 children)

Well, the ASD was pretty much in line with any other screening tool, but I had honestly expected at least one of them to score me closer to the low range, given that I manage well day-to-day.

For ADHD I am mostly relieved it didn't indicate any, mostly because it would complicate my assessment attempts haha.

I was a bit surprised that my score for OCD was so low, because I struggled intensely with that as a child.

[–] Lhianna@feddit.de 4 points 1 year ago (1 children)

I scored a 212 on the RAADS-R and I felt similar about it. How could I score that high and still seem like a well-functioning adult? Keyword being "seem like" because while I'm very good at masking it also costs a lot of energy and I'm almost always exhausted. Actually listening to myself and acting accordingly helps with that so I might seem "more autistic" nowadays but I have a lot more energy for things.

[–] Deestan@lemmy.world 3 points 1 year ago

Yeah, that's a good point. I have learned I have to be extremely conscious about how much "stuff" I let into my thoughts everyday. If not, I get anxiety and depression symptoms. Some times it means not reading my book on the bus, some days it is leaving the office to lunch alone, etc.

[–] Deestan@lemmy.world 4 points 1 year ago (1 children)

I like how each test has a section clarifying vague or badly phrased questions.

[–] BackOnMyBS@lemmy.world 4 points 1 year ago

Yeah, that's pretty considerate and helpful 🙂

[–] Norodix@lemmy.world 2 points 1 year ago (1 children)

Out of curiosity I did one of these tests. I got 34 on Autism Spectrum Quotient, which it says is significant. But to me the questions felt way too generic. I suspect most introverts would score high on this test.

[–] BackOnMyBS@lemmy.world 1 points 1 year ago

Yeah, I think all of these tests are aren't conclusive by themselves. The scores need context and self-awareness.

[–] Lotsen@lemmy.dbzer0.com 1 points 1 year ago (1 children)

Did a few of them and as I thought I am autistic

[–] BackOnMyBS@lemmy.world 1 points 1 year ago (1 children)

If you feel comfortable sharing, what were the results?

[–] Lotsen@lemmy.dbzer0.com 2 points 1 year ago (1 children)

137 of 200 (sorry for late reply I was asleep)

[–] BackOnMyBS@lemmy.world 1 points 1 year ago (1 children)

what assessment was it?

also, you don't have to apologize. take all the time you want 🙂

[–] Lotsen@lemmy.dbzer0.com 1 points 1 year ago (1 children)

it was the aspie quiz (sorry for not being clear enugh)

[–] BackOnMyBS@lemmy.world 1 points 1 year ago* (last edited 1 year ago) (1 children)

The probability does not seem to correspond directly to the 0–200 scoring range, however. We found that:

A score of 140 or more results in a 100% probability of being autistic

A score of 100 results in a probability of 50% probability of being autistic

A score of 95 results in a 63% probability of being typical (so 37% probability of being autistic)

Yep, you're near close to the 100% probability. Have you considered seeking an official diagnosis?

[–] Lotsen@lemmy.dbzer0.com 2 points 1 year ago

When I get time. I will most likely do it.

[–] kSPvhmTOlwvMd7Y7E@lemmy.world 1 points 1 year ago (1 children)

I got 1/10. I think i didn't pass

[–] BackOnMyBS@lemmy.world 2 points 1 year ago (1 children)
[–] kSPvhmTOlwvMd7Y7E@lemmy.world 2 points 1 year ago (1 children)

"Short Autism Spectrum Quotient AQ-10"

[–] BackOnMyBS@lemmy.world 2 points 1 year ago (1 children)

I'm sorry. You're not autistic. /j!! 😋

What do you think of your score?

[–] kSPvhmTOlwvMd7Y7E@lemmy.world 3 points 1 year ago

Pretty accurate I believe! Just was curious lol