this post was submitted on 30 Sep 2023
283 points (93.0% liked)
Asklemmy
43945 readers
704 users here now
A loosely moderated place to ask open-ended questions
If your post meets the following criteria, it's welcome here!
- Open-ended question
- Not offensive: at this point, we do not have the bandwidth to moderate overtly political discussions. Assume best intent and be excellent to each other.
- Not regarding using or support for Lemmy: context, see the list of support communities and tools for finding communities below
- Not ad nauseam inducing: please make sure it is a question that would be new to most members
- An actual topic of discussion
Looking for support?
Looking for a community?
- Lemmyverse: community search
- sub.rehab: maps old subreddits to fediverse options, marks official as such
- !lemmy411@lemmy.ca: a community for finding communities
~Icon~ ~by~ ~@Double_A@discuss.tchncs.de~
founded 5 years ago
MODERATORS
you are viewing a single comment's thread
view the rest of the comments
view the rest of the comments
I have epilepsy, and a few rare genetic disorders - there wasn't much of a healthy community for them on Reddit, especially my weirder shit, but I would love to see at least Epilepsy/Neurodegenerative/connective tissue disorder communities have a bigger presence. A few exist, but don't have posts, etc. My spouse has encouraged me to be the one to post, but I'm afraid of screaming into the void, just yet.
I think you'd have plenty of people join an epilepsy community as it's fairly common.
ED? I’ll post if you make it, but I have a super mild form. Honestly it feels like a positive thing 95% of the time, so I wouldn’t want to, like, humble brag?
yessss I miss the disability community and all the smaller subs where you could talk to other people about very rare/specific medical topics. Time to go search for the EDS gang on lemmy, or maybe do some void screaming if I can build up the nerve (・_・;)