CurseAvoider

I'm basically spending the evening now trying not to puke (i don't know if I mentioned that but nothing comes out, I "just" go through the motion like my body is trying to puke my lungs out, but nothing ever comes out) because I pushed myself too hard. Even when I'm doing fine (relatively speaking of course) that means planning the day in advance and pacing myself throughout, and limiting my activities. I was doing mostly fine coming home from the hematologist, but afterwards I called family and friends to update them on what came of it and all this talking exhausted my "nause-o-meter" lol. Now I can barely do anything but sit down and type this.

You were indeed the one I was referring to! After talking to more people this evening I also think that they really, really don't want to take responsibility for a potentially wrong move. The play seems to be that to get a doctor to do something, you need to present them with an even worse outcome. Although in your case with the "therapist" she really seems to think she's untouchable. I should have told my hematologist that since she thought I didn't have an illness that doesn't prevent me from working then I should stop taking the blood thinners. See how she feels about taking responsibility for that lol. But tbh although we were reaching the end of the appointment she seemed kind of in a hurry to be rushing me out asap when I mentioned the certificate, going from one topic to the next very quickly and then basically saying "alright thanks bye". I'll be better prepared from now on.

I'm truly sorry to hear about what you're going through. They drive us mad with bullshit. Studies even show that cutting out all this red tape would actually save money, but no, we have to torture and run sick people in circles so we can appear tough on fraud.

My hematologist works 2 days a week anyway, I can't do anything with her. Sometimes I need advice on the spot but she only calls me back the next day. If I don't pick up, she doesn't leave a message or anything. The receptionists don't even understand the problem half the time . One of them didn't even know my blood thinning medication by name when I mentioned it and this is the cancer and HEMATOLOGY department. What can you even do with that.

Thank you comrade, wish you strength too. I haven't reached that stage yet but I'm sure I will. I'm thankful to have a good therapist, she gave me advice regarding disability benefits, one thing I should have done is ask for certificates for sick leave since last year. I should have done that because it helps a disability claim, but I will be doing it starting on Thursday when I see my hematologist. Since I haven't had a job or unemployment benefits since January last year I didn't need any certificates and didn't think to ask, but it would have helped process it faster if I need to submit it (which I know is what's gonna happen already, but I have to play along with the process). I just hope they don't hold it against me that I didn't have certificates last year to deny me benefits.

Solidarity with your partner. I got the genetics test to my knowledge pretty much all the ones they knew to give me, and they came back negative. We have no idea how I developed these clots. The moderna covid vaccine which I got in 2021 was actually pulled from the market over this problem, but they say the clots develop over like two weeks to a month. Mine came three years later, so it's probably not the cause. Because of that I have to treat it as if I could develop more embolisms any day if I wasn't under treatment.