this post was submitted on 01 Feb 2025
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Life is just becoming untenable. It's bad enough being ill and disabled, dealing with chronic pain, endless hospital appointments, multiple surgeries and seeing my life slip down the drain because I'm not well enough to do anything worthwhile. But I could live with this. What I can't cope with any more is poverty.

It's one thing going through benefit appeals. OK my money gets stopped for months during the appeal, and I rack up debt and have to beg for food on here. It's hard because I often have to make multiple posts on mutual aid before getting a response, and when I do get a response it's often not enough to see me through until I can get another response. So living with constant threat of hunger too. Having to eke out each morsel of food carefully. But I could live with that for a while until my benefits get sorted, since it's temporary.

But now the government say they are cutting disability benefits drastically, to the point I will not be able to live on them, AND they're making it virtually impossible to claim them AND they're forcing claimants into work placements. Multiple doctors have written me letters of support saying I'm totally unfit for any type of work whatsoever, and need help with basic daily things. Yet I still got 0 points on my last assessment. So there is no way the DWP will take the doctor's word for it that I can't work when these new rules come in (and the government say they're being implemented in 54 days.) I know I can't work any more, it's not even a debate.

On top of cancer treatment and a stroke, I'm currently recovering from my last foot surgery. I can't even wear shoes right now, and they said the recovery could take up to 4 months to be complete. I need another foot surgery and I've been given the date - 24th April. That's three months from now. That means just as I recover from this surgery I'll be having another one and have to go through the whole thing again. And this recovery has been horrible - as well as being unable to wear shoes I ended up in A&E when my surgical wounds got infected and it's still infected. I have to get the dressings changed by the nurse multiple times a week and pay for my own bandages because the NHS don't pay for that! I got the money for the bandages by begging on here. And that alone puts me at risk of getting in trouble with the DWP. AND I have to constantly fight to keep my meds as they're always trying to stop or reduce them on cost grounds, never on medical grounds.

I just feel that this latest news about disability benefits is the final straw. When this is implemented I don't see any way out but suicide. I am scared of course, I tried once before and just ended up in intensive care for 5 days. I'm worried about making another mess of it. This sick world does everything it can to make the most reliable and painless suicide methods unavailable, while making people's lives more unbearable to they want to die, but can't.

I'm thinking my only real option is drowning. I live right by the sea and have some diazapam tablets, maybe I can take enough to knock myself out so the drowning won't be so bad. I should stress I am planning to do this in several months when the financial situation becomes clear, not right now so I don't want any do-gooders phoning the police on me or any shit. I am only writing this so if the time comes people will know I did this purely for financial reasons, because the government have bullied me to the point of having no other way out.

I will not accept being out on the street, or moved from shelter to shelter. In fact I asked my shitty therapist about sheltered accommodation, you know what she said? She said you have to pay to live there, it's not free. I said so what about when I'm not in receipt of benefits, such as during appeals? She said then I'd be evicted. There is no security or safety, anywhere.

I am tired of this. The immense stress of benefit assessments and appeals is bad enough, but this new government have taken away all hope of a survivable future. It's already exhausting and stressful begging for food and never knowing whether I will get a response or not, but this new situation means the end of all hope and a life of permanent destitution and homelessness.

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[–] Future_Honkey@hexbear.net 22 points 1 day ago* (last edited 1 day ago) (2 children)

I hope i can get across to you how much it pains me to see the growing amount of people hurting on here, and how i can't help everyone. I don't mean to compare my pain to yours, im trying to express something in an attempt for you to at least not feel bad for needing money. I don't want to get into my own shit, but i know at least how a few straight years of being looked down on feels. The fact you're forced to feel this way makes me so angry for you, and at myself for not being a better person, the kind that had the energy, the smarta, or even just the money to help everyone instead of who i am.

Ask for money without shame, i beg you. Not here. This is the one place that (i desperately hope) understands it's not your fault. To your point on how it's tough to ask for money and that it takes more than once... It's not a fix, but if you're holding back from work about bothering us...consider asking more often. There's people here making multiple posts per day to get by, and I've never judged a single person here, in any post, hand to god. I'll fuggen fistfight any fool whut does (and im not even tough).

[–] DisabledAceSocialist@hexbear.net 11 points 1 day ago* (last edited 1 day ago)

Thanks. I'm way past caring about judgment for it, it's just the stress of the unreliability, never knowing if anyone will respond or if they do, if I'll get enough to last for a week or more. Same thing with benefits, the stress of the unreliability - will I win my appeal? if I do, will the government do what they are saying and cut benefits, etc. There is never any security. I can only get from day to day, always worrying about food and homelessness.

In fact, I get far more messages offering "helpful" suggestions on making money, than messages actually helping. So many messages where people tell me to monetise my situation by blogging about it, give tips on investing in stocks (invest what? I have no money) ask me to join in their money making schemes. Apart from anything else, on disability benefits you're often not allowed to make money, or if you do they'll deduct money from your benefits, so all these suggestions are no use to me anyway.

[–] gingerbrat@hexbear.net 6 points 1 day ago

how much it pains me to see the growing amount of people hurting on here, and how i can't help everyone

Thanks for putting into words what I'm feeling too. It's debilitating to watch so many of us suffer needlessly, may it be from lack of medical care, flat out benefits or wars. You're not alone with this feeling of helplessness. But remember, Honkey, this system is designed to make us feel this way. Don't let it break your spirit, and keep doing what you can. And if all that you can do is listening to to your comrades, as it is in my case, then that's enough for now. We'll help everyone eventually, including @DisabledAceSocialist@hexbear.net and ourselves.

[–] gingerbrat@hexbear.net 15 points 1 day ago (1 children)

You replied to my "existential crisis" comment with so much compassion although you're in a much tougher situation, and I wanted to start by saying thank you for caring so much about others even when you're in dire needs yourself. You are a true comrade, and I am feeling better just knowing you are out there.

I think you're doing anything you possibly can, you're asking for help, and you know the UKs systems better than I do, so I don't have any advice. I wish I had money to spare to help you truly, and not just for another meal or just so making rent (I barely have enough to get by). I wish there was more an individual person could do to help you, but as you well know, collective action gets the goods. I'm praying for a revolution for all of us, to finally get rid off this dehumanized exploitation you (and everyone else) are being exposed to. I'm angry for all of us, and I don't want you to die bc of money. Neither now, nor in the future.

I'm sending you unconditional love and camaraderie, and I wish I had more to give. Please, stay with us for as long as you can, comrade.

[–] DisabledAceSocialist@hexbear.net 13 points 1 day ago (1 children)

Thank you! Camaraderie means a lot to me. I don't have anyone in my life in real life. When I got sick and was unable to really be fun much any more, all my friends gradually drifted away. I haven't had any human contact, besides online and healthcare workers, in 16 years. So having online friends is all that has gotten me through this far.

[–] gingerbrat@hexbear.net 10 points 1 day ago (1 children)

I'm glad there are some souls around the globe that have gotten you this far, and I can relate a lot to that sentiment. While you may be alone in person, there's almost always someone who's just a typed message away, and is actually willing to listen (and that includes me, if you want to).

However, I will never understand people abandoning their friends over becoming sick. If anything, this only proves the lack of depth to their side of the friendship, and that's simply disgusting. Friends don't leave you hanging just because "you're no fun to hang around anymore". Bullshit, when a friend gets sick, you don't abandon them??? I could scream about this for hours, but I'll shorten it to: You deserve better friends that respect you and treat you right.

[–] DisabledAceSocialist@hexbear.net 9 points 1 day ago (1 children)

Thank you. Sometimes i think I must have done something bad in a past life and this is my penance.

[–] gingerbrat@hexbear.net 10 points 1 day ago

You haven't. Even if you had a former life, it wouldn't impact the current one. New life, blank slate. Don't let anyone tell you otherwise. unity

[–] Dirt_Owl@hexbear.net 16 points 1 day ago* (last edited 1 day ago) (1 children)

It isn't fucking fair. No one should have to feel how you are feeling right now. I've been there. It fucking sucks. It's the worst thing ever. You feel like it will never end.

You deserve so much better. I really hope things turn out better for you. I really hope you survive and life starts treating you better. I really, truly do. I'm sorry if that sounds insincere and it probably doesn't help but I really mean it. Because I know how much it fucking hurts. I am so sorry this system is so inept. Shit like this is why I get so damn mad at it all. We have to fix it. We have to do everything we can to try because no one should have to feel worthless.

EDIT: I don't know if it's helpful at all, but please use the mutual aid comm if you're comfortable doing so. It might be able to help you in times where accommodation fees come in to play. A lot of comrades here use it to help pay rent, so please don't hesitate to make a mutual aid post of you need it. We will never ask you to justify why you need it because you're a fucking human being and you deserve basic compassion.

[–] DisabledAceSocialist@hexbear.net 9 points 1 day ago* (last edited 1 day ago) (2 children)

I mentioned in my post that I do make posts on mutual aid. However I often get ignored. Sometimes I have to make up to three posts over the space of a couple of weeks before getting even one response. When I do get a response it's usually not enough to last very long to the point that I have no food security. When I finish what food I have and make another post, I don't know if it'll be weeks and multiple posts before someone responds. The food bank access here is terrible and takes ages.

I mean, I get it, there are people in literal war zones posting on mutual aid. People who donate prefer to donate to a refugee who's in an even more desperate situation than me. But I'm still often hungry and that just makes everything even worse. Mutual aid is just a really unreliable way to stay fed. Sometimes people even make offers of help and then don't follow through.

[–] Tomboymoder@hexbear.net 8 points 1 day ago (2 children)

I often wonder if there is a better way for the mutual aid comm to be run, but idk what that would be.
Right now it just feels chaotic and unreliable.

As I see it, the whole comm was set up on a pretty small scale for people who are having a brief, rough patch. It isn’t really suited for tougher cases like DisabledAceSocialist who need proper social structures that are dedicated for people like them and can give them reliable support.

And another big problem is that without bumping and abusing bots all the mutual_aid posts would get buried beneath posts from other comms. And even then some posts get almost no attention at all because it just didn’t show up in people’s feed. Implementing a system that gives those posts more visibility would be quite helpful.

I've wondered too, but I think a lot of the people would stop donating if it wasn't anonymous, and the anonymity is probably what makes it chaotic.

[–] Dirt_Owl@hexbear.net 8 points 1 day ago* (last edited 1 day ago) (1 children)

I totally understand. I was just trying to think of something, anything.

I almost feel like you should send your story to an org of some kind. If you're in the UK I think Scope helps with accommodation. But again I fully understand if you don't want to.

I'm praying they don't cut you off.

[–] DisabledAceSocialist@hexbear.net 10 points 1 day ago (1 children)

Even if I was willing to publicise myself, it's pointless. There have been stories in the news of disabled people literally starving to death and committing suicide when their benefits were stopped. Did anything change? No. Did anyone care? Not really. In fact most commentators were victim blaming the deceased for not trying hard enough to access help.

[–] Dirt_Owl@hexbear.net 8 points 1 day ago (1 children)

It really is a twisted system. I'm sorry you have to rely on such a shitty "welfare" network that barely helps the people it's supposed to.

[–] DisabledAceSocialist@hexbear.net 8 points 1 day ago (1 children)

Even here and on lemmy, people treat it like a joke. I've had multiple people on both sites offer help and then not follow through. In fact I called out a user on lemmy for doing this and he just got offended, tried to defend his actions and then made out i'm just an angry person wanting to vent at someone. Like I don't have a justifiable grievance that this person publicly broadcasted in my thread that he was going to help me (meaning other people who might have helped probably didn't bother as they thought i was already being helped) then didn't and didn't even message to let me know he'd changed his mind. Later when I mentioned what he'd done in a thread his excuse was "it turns out i didn't have much money on my debit card." So many things wrong with this:

  1. Check you're able to help first before making an offer.
  2. If you can't follow through for some reason at least let the person know instead of leaving them hanging on, hoping.
  3. if they say what you did hurt them, don't get defensive, make excuses and try to make out they're making a fuss about nothing.

I had an even worse one on lemmy who spent two weeks sending me long messages about how he was going to help me and then never followed through. I've seen other people talking about the same issue. It seems to be an epidemic. It's worse than not getting an offer at all.

[–] kfc@hexbear.net 12 points 1 day ago (1 children)

I don't know what to say, I don't know how meaningful sympathy from internet strangers is. It's unbelievably bleak that you - among others in the UK - have just been deemed acceptable sacrifice to keep the wheels of capital churning.

I really don't know what to say. I'm sending you my love, however much that means to you. I'm sorry