STRICTLY PROHIBITED (unless you're a good boy doctor)
this post was submitted on 18 Nov 2024
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This is under the assumption that every single being being born anywhere is being gene tested and born at a hospital which is statistically impossible.
Is over thinking tv shows a disability? Asking for a friend, obviously.
Why wouldn’t you cure things at birth if you already know how to? Like, you know the kid is going to be blind, and you could just give the mom a shot to change that, but you’re gonna choose to let the kid be born blind? I dunno, that’s kinda messed up.
Because blindness isn't a disability in the Federation. Geordi lives a full and happy life, and, as OP mentioned, is actually able to save the entire crew specifically because he's blind.
"Fixing" his blindness in a compassionate, post-scarcity world that has the tools to allow someone to succeed no matter what physical characteristics they possess is like "fixing" a baby's hair color. It doesn't make the child's life easier, so what's the point other than eugenics?
In the episodes of TNG that look at their near future, Geordi has his eyes fixed, or at least has realistic implants that allow him to see normally. Why would he do it if there's no point? Is he stupid?
save the entire crew specifically because he’s blind
so you take away a persons autonomy to have the potential to be able to see and live a life with natural sight as you see a use for it.
You did a 360 there on the ethics and wandered into utilitarian territory reducing people to things.
You might not define it as a disability but it’s still taking autonomy from someone. They could just as well invent a tool to help save the crew. There is more than one option for things such as that rather than reducing a persons entire definition to their difference and how useful it is to you.
Human condition is more than their differences or their use to you.
A major Geordi character arc revolves around his eyesight. Yes, his prosthesis affords him additional abilities and allows him full function, but that says nothing of the otherness he has felt and psychological impact of being different throughout his whole childhood, and the challenges he faced for acceptance, even within StarFleet.
To dismiss his personal struggles while assuming that he's fulfilled and would OPT to not have regular eyes is incredibly arrogant and ablest, no? It is also deeply lacking in awareness and consideration of psychology, which is pretty bang-on for Boomers of the era that STTNG came out. "Oh, well looking at the END RESULT, he turned out fine, despite his massive trauma."
The likelihood is that he did not turn out fine, we just don't see the granular details of his psyche, on screen.
Which is one of the arguments against the Federations ban on genetic manipulation. There are plenty of others against it. There's no one answer to this situation, unfortunately.
Why the hell would it be eugenics to cure disabilities. If you could turn me from a trans chick into a cisbabe, I'd be down. I mean on one hand periods will suck, but on the other, maybe my fucking hair will grow out!
I’m in the same position, but if I could choose between the best hearing aids the 24th century can offer or repairing my ears, then I’m going full Geordi. Much in the same way I know some trans women wouldn’t make the choice we would.
And that’s the thing, routinely Star Trek shows disabled characters having choices in how to approach their situation and making the choices they feel are right for them. Some people will take a 5% chance of negative consequences to get their legs back, and others will take a futuristic mobility aid instead.
We actually already see this in cochlear implants. They’re difficult; unpleasant, and would give you hearing you don’t otherwise have
Why is Barclay disabled. Unless being a perv is a disability.
Holodeck addiction is a disability I guess
Here is my take, assuming:
- We have the ability to remove all birth anomalies
- It is safe and effective, i.e. not an experimental technique
- It is not controversial, i.e. curing sickle cell is just the done thing\
- Scanning tech is much better than today
Situation 1:
Woman learns she is pregnant, say week 6. Gets a routine scan on the embryo. She discovers it has a genetic disorder. That will cause it to not be able to breathe well, running and playing will not be an option for your baby, they will survive; sweet no brainer there; splice in the fix doc. Correction is spliced in the next week, monitoring for rest of normal pregnancy.
Situation 2:
Woman learns she is pregnant, say week 6. Gets a routine scan on the embryo. Doctor says, looks like there is a genetic defect, the audio nerve is not going to develop normally, your baby will hear badly at birth, and then over the next two years will go permanently deaf. Implants could fix this issue after birth, and living as a deaf person is not difficult. However we can ensure that the nerve develops normally and your baby will have perfectly normal hearing.
In situation 1, the obvious answer is to fix the issue, having life long breathing difficulties that could easily be avoided would be cruel.
In situation 2, in my opinion it would also be cruel to impose on a kid; hey we could have fixed your hearing in a safe and effective way, but we decided for you before you were born that you would be "special".
I get where people are coming from, but they are looking at it with 2024 eyes, not 2424 eyes. Why would you impose on a kid, who has no say in the matter, a disability? Because that is the choice you are making, you are imposing a disability on a child that does not need to be there.
We currently give women folate, to protect against neural tube defects; along with a bunch of other interventions. We are already "interfering" with the "natural" progress of pregnancy and birth, we are only going to get better at it.
And also the conflating of eugenics and fixing birth defects is completely off base. These are only related by the fact that breeding is involved; they have nothing in common beyond that. In the same way that my kitchen knives would make great stabbing weapons, but cooking and stabbing only really have the tools in common.
Fetus is developing normally, except it has no ocular nerves. There is no cure for this. Baby is born and neural interfaces are implanted, along with a device for feeding EM sensory data directly into the brain.
And also the conflating of eugenics and fixing birth defects is completely off base
It's not off base and what you're describing is called liberal eugenics, or new eugenics.
[...] some critics, such as UC Berkeley sociologist Troy Duster, have argued that modern genetics is a "back door to eugenics".
I'm sure the laws set in place after the eugenics wars would be strict enough to not leave such wiggle room.
It doesn't really seem like in either situation I described that the treatment-enhancement gap has been breached.
There is no PGD, we are considering Star Trek levels of scanning technology. Both situations resulted from natural fertilisation, there was no group of potentials to select from.
The goal of eugenics, is unambiguously, to breed for some ideal. This resulted in some pretty dark times in the recent past.
Realistically, a lot of medical technology today is the antithesis of the eugenic ideal. Allowing those, who in the past, would have died from various causes to live. We at a species are the stronger for it.
Ok but for scenario 2 have you asked the deaf? Many of us say to do just that. In fact we disproportionately fight the hearing by saying that infants cannot consent to cochlear implants
And it’s cruel, because then they never get the opportunity to develop speech when they’re young with audible feedback.
That is an interesting point, as you say infants cannot consent to implants. Which does raise ethical questions.
But you are, I think, still looking from a 2024 perspective, where none of the technologies are even remotely available.
If you can consider it from the 2424 perspective, the treatment is non-invasive, permanent, safe and effective. It has been the standard for 100 years. Star Trek medical tech is magical to us because it is simply a story, but consider if it were real, what argument could you make to withhold the treatment?
I would see this as similar to the anti-vax arguments; withholding vaccines from a child who then goes on to catch a life altering disease, is a form of abuse. The kid cannot make its own judgements or medical decisions, but it sure can catch polio.
Would deliberately withholding "cures" be considered child abuse?
I took several years of sign language and I have to be real, the deaf community at large have some fucking weird opinions about healthcare
Deaf kids getting shunned because they got a cochlear implant is a good example
Or parents refusing inexpensive implants early in life for their kids because they’d rather their kid be deaf like them than even have a chance to develop regular speech patterns. It’s cruel.
Combine this with the simultaneous victim-complex about how hard it is being deaf (which is entirely fair. We did a project where we all wore earplugs for a week at school, and that was HARD. Got really good at cheating in ASL tho) and it all makes me feel kinda…. Icky?
“Being deaf isn’t a disability, but also we will shame you if you get treatment. Also being deaf is so hard and there’s a lot we can’t do. But I won’t let me daughter get implants, because then she would be less deaf than me, which isn’t a disability”
That is a difficult question. I would err on the side of yes. With some caveats.
Not treating some serious genetic conditions when safe, effective and proven treatments are available. Could easily be construed as abuse.
When considering the Star Trek universe medical care is free and easily accessed. Treating these conditions would be the default.
Turning this the other way around, and looking at it from the point of view, that the technology is the standard. What argument could you make in favour of leaving the condition in place?
The deaf see it similar to how the intersex do, that it should be the individual’s choice when they’re old enough to decide.
Except that’s way after critical language development could be aided by implants, leaving deaf adults who later decide to get them stuck having to relearn how to talk.
I mean, in response to the last one, the Federation does allow (and sometimes advocates) for the correction of birth defects.
Julian: DNA resequencing for any reason other than repairing serious birth defects is illegal. Any genetically enhanced human being is barred from serving in Starfleet or practising medicine.
Deep Space Nine, "Doctor Bashir, I presume"
Doctor: Yes. It's a girl. And aside from the deviated spine, she's healthy.
Paris: Will she need surgery?
Doctor: Fortunately, we've advanced beyond that. Genetic modification is the treatment of choice.
Voyager, "Lineage"
So I imagine plenty of disabilities do end up being erased, it's just that being disabled is also socially accepted to a much greater extent than today.
To add here, not everyone is born with disability but sometimes shit just happens
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This is a stupid take as well. There is also evidence that the federation does practice the correction of birth defects and disabilities when appropriate.
And why would they not? Allowing such impairments to exist when the medical technology to prevent it is available seems insanely unethical to me. Like breeding pugs because if people stopped doing that the breed would cease to exist, ignoring the fact that being a pug is a miserable existence for the animal.
I believe the most sensible policy for the federation (and us in real life) would be to correct any and all birth defects, disabilities and impairments wherever possible, while accommodating and fostering compassion and acceptance for the cases where it is not possible.
Disabled people are not lesser than anyone else and should have the same capacity to participate in society, but that doesn't mean we shouldn't try everything to prevent people from being disabled.
Plus in Geordie's case, his visor gives him better than normal sight. He can look at parts of the electromagnetic spectrum other than the visible wavelengths, so restoring his natural sight would have been giving him a handicap rather than removing one.
Also the whole "that disability is a part of who they are" sounds a lot like reducing people to their disabilities. Like it's one thing if there's nothing that can be done or if the best we can do isn't enough to cause it to no longer be a disability, then they should be accepted disability and all. But it's another thing if the disability could be corrected or made redundant (like Geordie's visor giving him better than normal vision).
I don't think the timing will work out for me, but if cybernetics get going during my lifetime, I'd consider getting augmentations. A coprocessor and memory expansions would be great, though I'd probably need tin foil hats or a magneto helmet to protect from solar flares and EMPs.
It's crazy to me that some people think improving people's capabilities, disabled or not, is unethical. No one bats an eye if someone gets a broken arm set properly to avoid it becoming a disability.
Allowing such impairments to exist when the medical technology to prevent it is available seems insanely unethical to me.
There's a not insignificant minority of the deaf population who believes that there should be no "cure" to deafness researched or put into practice because they believe it will destroy their community to have children receive this cure at birth. They literally want to deny children the ability to hear, even though we might be able to cure deafness with genetic engineering or other tech
I am aware of that sentiment and consequently find it selfish and ethically objectionable. While I understand that a special bond is formed this way, that happens anyway between halfway decent parents and their offspring because they love each other.
That is not a good enough reason to deny your child one of its senses.
Ok, but I think speaking people need to understand the Deaf perspective as more than just “community” but as also being informed by speaking people, especially experts and medical professionals routinely disregarding the needs and wants of Deaf people to force us into their society. After all CODAs are Deaf too.
For context, I’m a hard of hearing woman who was, at the suggestion of experts, “mainstreamed” (ie my parents were told not to learn sign language or teach it to me because I might prefer it to spoken language), my mother and grandmother also had that experience. I feel cheated out of community, culture, and communication. I learned some sign as an adult but it should’ve been a native language because it’s a language I don’t need assistive devices for
Cochlear implants are great! They’re also uncomfortable to learn to use and painful at first even for adults. But when the question comes up as to whether young children should get them we’re treated as crazy for saying that the child should be taught sign language and given a choice. But instead hearing parents of deaf children usually don’t bother learning sign language.
We might start trusting y’all when you start demonstrating that you care more about what’s best for us than what makes us easier to deal with for y’all.
As another comment in the thread said, this situation is fairly different from a cochlear implant for a number of reasons. This situation is most similar to child being born to deaf parents with normal hearing. Not the same as a cochlear implant at all. The choice in this situation is being deaf or having normal hearing, no inbetweens.
Me personally, I wouldn't want to pass on any of my genetic gunk to my kids in the name of culture, communication, or community. That's just cruel and unusual. I would not be surprised if my kids resented me for it if they knew it could have been prevented. Even more so if cellular reconstruction technology is available to repair stuff later in life. And it's not like they can't participate, they're still your kids, they're just different from you in a small way. Humans are adaptable.
Culture should not always be preserved. My family has had to learn that the hard way.
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This is the breath of fresh air this dumb post made me need. Thank you.
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https://youtu.be/bqm_Iq8rFeg?t=16
"Surely by the 24th century, they would have found a cure for male pattern baldness." Gene Roddenberry had the perfect response.
"No, by the 24th century, no one will care."
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The point about accomodation is the key here.
If being born without functioning legs isn't actually an impediment or challenge because society makes allowances for people without legs, then it's no longer a handicap!
If a blind person has options beyond merely having their sight "restored" to that of the baseline "normal", then they have options that might open up paths that regularly sighted people don't have, in which case their unique trait of being blind becomes an asset.
There's the secret to the utopia Star Trek positsv not that we try to "cute" everyone born different, but that we instead create opportunities for them to thrive as they are. In the future of Star Trek, the word "disability" is probably alien to them. Rather, they would describe someone in our time with such challenges as "disenfranchised" because we don't offer them opportunities.
My only problem with this is that Geordi made it clear more than once that not only would he rather just be able to see, but that his VISOR caused him constant pain. I wouldn't really call that accommodating for his blindness if that's what was required to get into Starfleet later.
And, of course, that was what made it so impactful when he finally had eyes that worked.
And then there was Melora on DS9. Starfleet could have done so many things to fulfill her dream of traveling the stars without having her be stuck in the chair in near-1g environments or accept Bashir's treatments. In fact, the only reason so few Elaysians ever left their homeworld was that everyone else was fine with 1g and no one gave a shit about their needs.
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"curing at birth" != "Eugenics"
Still, the spirit of accommodation is spot on.
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Uh...ok.
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